Obstacles to conducting epidemiological research in the UK general population

Hester J T Ward; Simon N Cousens; Blaire Smith-Bathgate; Margaret Leitch; Dawn Everington; Robert G Will; Peter G Smith

doi:10.1136/bmj.329.7460.277

Obstacles to conducting epidemiological research in the UK general population

BMJ. 2004 Jul 31;329(7460):277-9. doi: 10.1136/bmj.329.7460.277.

Authors

Hester J T Ward¹, Simon N Cousens, Blaire Smith-Bathgate, Margaret Leitch, Dawn Everington, Robert G Will, Peter G Smith

Affiliation

¹ National Creutzfeldt-Jakob Disease Surveillance Unit, Edinburgh EH4 2XU. h.ward@ed.ac.uk

Abstract

Experiences from a national case-control study of Creutzfeldt-Jakob disease show the tensions between protecting individual patients' confidentiality and the access required for the benefit of public health

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Biomedical Research* / ethics
Biomedical Research* / methods
Case-Control Studies
Computer Security*
Confidentiality
Creutzfeldt-Jakob Syndrome / epidemiology
Data Collection
Epidemiologic Methods*
Ethics Committees, Research
Family Practice
Humans