Participation of Asian-American women in cancer treatment research: a pilot study

J Natl Cancer Inst Monogr. 2005:(35):102-5. doi: 10.1093/jncimonographs/lgi046.

Abstract

Few Asian-American women participate in cancer treatment trials. In a pilot study to assess barriers to participation, we mailed surveys to 132 oncologists and interviewed 19 Asian-American women with cancer from Northern California. Forty-four oncologists responded. They reported as barriers language problems, lack of culturally relevant cancer information, and complex protocols. Most stated that they informed Asian-American women about treatment trials. Only four women interviewed knew about trials. Other patient-identified barriers were fear of side effects, language problems, competing needs, and fear of experimentation. Family decision making was a barrier for both oncologists and patients. Compared to non-Asian oncologists, more Asian oncologists have referred Asian-American women to industry trials and identified barriers similar to patients' reports. Our findings indicate that Asian-American women need to be informed about cancer treatment trials, linguistic barriers should be addressed, and future research should evaluate cultural barriers such as family decision making.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Asian People / education
  • Asian People / psychology*
  • Asian People / statistics & numerical data
  • Attitude of Health Personnel
  • Clinical Trials as Topic / psychology*
  • Clinical Trials as Topic / standards
  • Decision Making
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Male
  • Middle Aged
  • Patient Acceptance of Health Care / ethnology*
  • Patient Acceptance of Health Care / statistics & numerical data
  • Patient Participation / psychology*
  • Physicians / psychology
  • Pilot Projects
  • Research Subjects / psychology*