Parent and patient perspectives on barriers to medication adherence in adolescent transplant recipients

Pediatr Transplant. 2009 May;13(3):338-47. doi: 10.1111/j.1399-3046.2008.00940.x. Epub 2008 Apr 22.

Abstract

The aim of this study was to identify barriers to medication adherence in adolescent transplant recipients. Eighty adolescent transplant recipient families reported in an open-ended manner about barriers to medication adherence. These responses were then coded to reflect potentially important themes associated with medication adherence. The themes derived included: forgot/distracted, poor planning/scheduling issues, physical barriers/medication issues, and voluntary resistance/attempts to be normal. Inter-rater reliability for barrier coding was very high (k = 0.91). Patients who were classified as non-adherent reported significantly more overall barriers, more forgot/distracted barriers, and more voluntary resistance/attempts to be normal barriers than those classified as adherent. Non-adherence was also found to be more likely when adolescents, as opposed to parents, were responsible for administering the medication. Further, non-adherence was more likely when taking morning rather than evening doses. These findings are explained with an emphasis on potential remedies that directly address the stated barriers.

MeSH terms

  • Adolescent
  • Attitude to Health
  • Child
  • Female
  • Health Services Accessibility
  • Humans
  • Male
  • Medication Adherence / psychology*
  • Organ Transplantation / psychology*
  • Parents / psychology*
  • Patient Acceptance of Health Care
  • Young Adult