Babies with myelomeningocele in Poland: parents' attitudes on fetal surgery versus termination of pregnancy

Childs Nerv Syst. 2009 Feb;25(2):207-10. doi: 10.1007/s00381-008-0653-1. Epub 2008 Jun 17.

Abstract

Background: Recent surgical advances have resulted in fetal surgery becoming an option for children with myelomeningocele (MMC). However, there is little information about the parents' attitudes towards such therapy.

Methods: Following a lecture on the current status and problems of fetal surgery for MMC, a 12-item questionnaire was administered to 58 parents of children with MMC. Questionnaire topics included knowledge of the disease and treatment options, as well as attitudes and concerns towards fetal surgery or termination of pregnancy.

Results: Following the lecture, 14 (out of 58) parents felt that knowledge of the disease would allow for abortion to be an option, while 18 were uncertain. Once informed of potential risks and benefits of fetal surgery, 34 parents had a positive or rather positive attitude towards this procedure.

Conclusions: On the basis of these results, it was concluded that this population is potentially interested in the use of fetal surgery.

MeSH terms

  • Attitude to Health*
  • Female
  • Health Education / statistics & numerical data
  • Humans
  • Male
  • Meningomyelocele / diagnosis
  • Meningomyelocele / embryology
  • Meningomyelocele / surgery*
  • Parents / psychology*
  • Poland
  • Pregnancy
  • Pregnancy Reduction, Multifetal / ethics*
  • Pregnancy Reduction, Multifetal / psychology
  • Surveys and Questionnaires