Use of a clinical data registry to evaluate medical technologies. Experience from the International Bone Marrow Transplant Registry

Int J Technol Assess Health Care. 1991;7(2):182-93. doi: 10.1017/s0266462300005079.

Abstract

We reviewed the 18 disease-specific evaluations that used the data base of the International Bone Marrow Transplant Registry to determine the effectiveness of alternative strategies for bone marrow transplant. We identify 17 treatment variables that physicians can control and report the associations between these variables and five clinical endpoints: stable engraftment, graft-versus-host disease, development of interstitial pneumonia, relapse, and disease-free survival. We also suggest policies to promote active participation in establishing and operating a registry.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Bone Marrow Transplantation / standards*
  • Bone Marrow Transplantation / statistics & numerical data
  • Databases, Factual / statistics & numerical data*
  • Humans
  • International Cooperation*
  • Registries*
  • Technology Assessment, Biomedical / methods*