Burden of caregiving amongst family caregivers of patients with eating disorders

Soc Psychiatry Psychiatr Epidemiol. 2013 Jan;48(1):151-61. doi: 10.1007/s00127-012-0525-6. Epub 2012 Jun 22.

Abstract

Background: Eating disorders (EDs) in a close relative can be particularly stressful for family members.

Aims: To assess the perceived burden of caregivers of patients with EDs and to identify demographic and clinical variables that could predict this burden.

Method: We conducted a cross-sectional study involving 145 ED patients and 246 related caregivers. ED patients completed the Health-Related Quality of Life in ED-short form, the Hospital Anxiety and Depression Scale, and the Short Form-12. Caregivers completed the Involvement Evaluation Questionnaire-EU version, the Short Form-12, the Hospital Anxiety and Depression Scale, and the Anorectic Behaviour Observation Scale. Descriptive statistics, ANOVA, Chi-square, and Fisher's exact test were applied to examine the inter-variable relationships.

Results: A high burden of caregiving was associated with being divorced (β = 14.23, SE = 3.88; p = 0.001), having a low level of education (β = 4.70, SE = 1.96; p = 0.02), having high levels of anxiety (β = 5.45, SE = 2.13; p = 0.01) or depression (β = 5.74, SE = 2.80; p = 0.04), and caring for a relative with a low physical quality of life (β = 5.91, SE = 1.78; p = 0.002).

Conclusions: Evaluating family caregivers of patients with ED for risk factors for increased caregiver burden and offering them assistance could reduce their perceived burden of caregiving.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Aged
  • Analysis of Variance
  • Caregivers / psychology*
  • Caregivers / statistics & numerical data
  • Cost of Illness*
  • Cross-Sectional Studies
  • Depression / psychology
  • Family*
  • Feeding and Eating Disorders / epidemiology
  • Feeding and Eating Disorders / psychology*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Quality of Life / psychology
  • Social Support
  • Stress, Psychological / psychology
  • Surveys and Questionnaires