Upper airway surgery of obstructive sleep apnea in pycnodysostosis: case report and literature review

Am J Med Genet A. 2014 Aug;164A(8):2029-35. doi: 10.1002/ajmg.a.36557. Epub 2014 Apr 8.

Abstract

Pycnodysostosis is an autosomal recessive disorder due to a mutation in the cathepsin K gene, which causes a decrease of the bone turnover; a review of the literature suggests that pycnodysostosis is frequently associated with severe respiratory obstruction, which needs surgical treatment. The aim of this paper is to describe the surgical treatment of a 3½-year-old girl affected by Pycnodysostosis complicated by a severe sleep-related respiratory disorder. The surgical treatment, consisting of adenotonsillectomy and palatoplasty, resulted in a striking amelioration of respiratory parameters and increased posterior airway space, and allowed the patient to avoid tracheotomy while awaiting for maxillo-mandibular surgery.

Keywords: OSAS; adenotonsillectomy; palatoplasty; polysomnography; pycnodysostosis; sleep; sleep apnea.

Publication types

  • Case Reports
  • Review

MeSH terms

  • Adenoidectomy
  • Brachydactyly
  • Child, Preschool
  • Facies
  • Female
  • Fingers / abnormalities
  • Humans
  • Phenotype
  • Polysomnography
  • Pycnodysostosis / complications*
  • Pycnodysostosis / diagnosis
  • Sleep Apnea, Obstructive / diagnosis
  • Sleep Apnea, Obstructive / etiology*
  • Sleep Apnea, Obstructive / surgery*
  • Tonsillectomy