Parents' Faith and Hope during the Pediatric Palliative Phase and the Association with Long-Term Parental Adjustment

J Palliat Med. 2015 May;18(5):402-7. doi: 10.1089/jpm.2014.0287. Epub 2015 Feb 13.

Abstract

Background: The loss of a child is associated with an increased risk for developing psychological problems. However, studies investigating the impact of parents' faith and hope for a cure during the palliative phase on long-term parental psychological functioning are limited.

Objective: The study's objective was to explore the role of faith and hope as a source of coping and indicator of long-term parental adjustment.

Methods: Eighty-nine parents of 57 children who died of cancer completed questionnaires retrospectively, exploring faith, hope, and sources of coping, and measuring parents' current level of grief and depression.

Results: For 19 parents (21%) faith was very important during the palliative phase. The majority of parents remained hopeful for a meaningful time with their child (n=68, 76%); a pain-free death (n=58, 65%); and a cure (n=30, 34%). Their child (n=70, 79%) was parents' main source of coping. Twelve parents (14%) suffered from traumatic grief, and 22 parents (25%) showed symptoms of depression. Parents' faith was not associated with less long-term traumatic grief (OR=0.86, p=0.51) or symptoms of depression (OR=0.95, p=0.74), and parents' hope for a cure was not related to more long-term traumatic grief (OR=1.07, p=0.71) or symptoms of depression (OR=1.12, p=0.47).

Conclusions: Faith was important for a minority of parents and was not associated with less long-term traumatic grief or symptoms of depression. The majority of parents remained hopeful. Hope for a cure was not associated with more long-term traumatic grief or symptoms of depression.

MeSH terms

  • Adolescent
  • Adult
  • Attitude to Death*
  • Child
  • Child, Preschool
  • Disease Progression
  • Emotional Adjustment*
  • Female
  • Grief*
  • Hope
  • Humans
  • Infant
  • Male
  • Middle Aged
  • Neoplasms / therapy
  • Netherlands
  • Palliative Care / psychology*
  • Parents / psychology*
  • Professional-Family Relations
  • Psychometrics
  • Religion
  • Social Support
  • Surveys and Questionnaires