European regulators' views on a wearable-derived performance measurement of ambulation for Duchenne muscular dystrophy regulatory trials

Neuromuscul Disord. 2019 Jul;29(7):514-516. doi: 10.1016/j.nmd.2019.06.003. Epub 2019 Jun 7.

Abstract

Development of novel therapies for Duchenne muscular dystrophy (DMD) are driving the need for more efficient ways of detecting changes in disease- progression in DMD [1]. However, medicines' approval must be based on outcome measures that are acceptable from a regulatory perspective. In this article, European regulators provide an update on the recent regulatory consideration of a new endpoint (Stride Velocity 95th Centile (SV95C)) that could be used in therapeutic DMD trials. This new endpoint aims to quantify a patient's ambulation directly, reliably and continuously in a home environment with a wearable device.

Keywords: Clinical trial endpoints; Duchenne muscular dystrophy; European regulators; Gait Variables.

MeSH terms

  • Biomechanical Phenomena
  • Clinical Trials as Topic
  • Disease Progression
  • Endpoint Determination
  • Europe
  • Gait
  • Humans
  • Muscular Dystrophy, Duchenne / diagnosis
  • Muscular Dystrophy, Duchenne / physiopathology*
  • Muscular Dystrophy, Duchenne / rehabilitation
  • Research Design
  • Walking*
  • Wearable Electronic Devices / standards*