[Family support upon immediate cystic fibrosis announcement]

Abstract

Cystic fibrosis, a rare, hereditary and chronic disease, affects the psychic functioning of children and their families. Since it is incurable, constant adjustments are essential to make sense of the inevitable evolution of the disease. The psychologists support the families and the patients so that all live as well as possible with cystic fibrosis.

Keywords: accompagnement; adolescence; annonce; announcement; cystic fibrosis; mucoviscidose; quality of life; qualité de vie; support.