Supporting the Decision Making of Children With Cancer: A Meta-synthesis

J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):431-443. doi: 10.1177/1043454220919711. Epub 2020 May 27.

Abstract

Background: Recently, awareness of children's decision making has increased in an effort to enhance palliative care. However, the conceptual framework for decision making among children with cancer remains unclear. Aims: We clarified the decision-making process of children with cancer regarding their care, treatment, and support from family and health care professionals, and identified their needs and preferences. Design: We used metaethnography to conduct a metasynthesis of relevant studies. Data sources: We searched PubMed, EMBASE, PsycINFO, MEDLINE, and CINAHL. This report was prepared in accordance with the PRISMA statement. Results: Of the 7,237 retrieved studies, 27 met our inclusion criteria. Four themes emerged that reflected the decision-making process of children with cancer: (a) facing changes brought about by a health threat, (b) preparing for action, (c) asserting one's choice, and (d) internal and external influences. Conclusion: Children with cancer initially undergo a decision-making process. Respecting children's preferences, values, and emotions may help build trusting relationships and promote their decision-making capability. Future research should focus on children's emotions, cognition, development, and interactions with parents and health care professionals.

Keywords: cancer; children; decision making; systematic review.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Child
  • Children with Disabilities / psychology*
  • Decision Making*
  • Female
  • Health Personnel / psychology*
  • Humans
  • Male
  • Neoplasms / psychology*
  • Parents / psychology*
  • Patient Participation / psychology*
  • Patient Preference / psychology*