Proceedings of the 2019 GRAPPA Collaborative Research Network Meeting

Robin Waxman; Carmel Stober; Deepak R Jadon; Ana-Maria Orbai; Vinod Chandran; Alexis Ogdie; Stephen R Pennington; Maarten de Wit; Denis O'Sullivan; Philip J Mease; April W Armstrong; Kristina Callis Duffin; Philip S Helliwell; Leonieke J J van Mens; Christopher T Ritchlin; Oliver FitzGerald

doi:10.3899/jrheum.200123

Proceedings of the 2019 GRAPPA Collaborative Research Network Meeting

J Rheumatol Suppl. 2020 Jun:96:25-30. doi: 10.3899/jrheum.200123.

Authors

Robin Waxman^{1

2}, Carmel Stober^{1

2}, Deepak R Jadon^{1

2}, Ana-Maria Orbai^{1

2}, Vinod Chandran^{1

2}, Alexis Ogdie^{1

2}, Stephen R Pennington^{1

2}, Maarten de Wit^{1

2}, Denis O'Sullivan^{1

2}, Philip J Mease^{1

2}, April W Armstrong^{1

2}, Kristina Callis Duffin^{1

2}, Philip S Helliwell^{1

2}, Leonieke J J van Mens^{1

2}, Christopher T Ritchlin^{1

2}, Oliver FitzGerald^{3

4}

Affiliations

¹ From the School of Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds; Cambridge University Hospitals National Health Service (NHS) Foundation Trust, Cambridge, UK; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA; Department of Medicine, Division of Rheumatology, University of Toronto, Toronto Western Hospital, Krembil Research Institute, Toronto, Ontario, Canada; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA; Conway Institute for Biomolecular Research, University College Dublin, Dublin, Ireland; Patient Research Partner, Our Lady's Hospice and Care Services, Dublin, Ireland; Swedish Medical Center/Providence-St. Joseph Health and University of Washington, Seattle, Washington, USA; University of Southern California, Los Angeles, California; University of Utah, Salt Lake City, Utah, USA; Bradford Hospitals NHS Foundation Trust, Bradford, UK; Amsterdam University Medical Centers/University of Amsterdam, Department of Clinical Immunology and Rheumatology Amsterdam, Infection & Immunity Institute, Amsterdam, the Netherlands; Division of Allergy, Immunology, and Rheumatology, University of Rochester Medical Center, Rochester, New York, USA; Department of Rheumatology, St. Vincent's University Hospital Dublin, Dublin, Ireland.
² R. Waxman, MPH, Research Assistant, School of Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; C. Stober, PhD, MBChB, MRCP, Consultant Rheumatologist, Cambridge University Hospitals NHS Foundation Trust; D.R. Jadon, MBBCh, MRCP, PhD, Director of Rheumatology Research Unit, Cambridge University Hospitals NHS Foundation Trust; A.M. Orbai, MD, MHS, Assistant Professor of Medicine, Director Psoriatic Arthritis Program, Division of Rheumatology, Johns Hopkins University School of Medicine; V. Chandran, MBBS, MD, DM, PhD, Department of Medicine, Division of Rheumatology, University of Toronto, Toronto Western Hospital, Krembil Research Institute; A. Ogdie, MD, Assistant Professor of Medicine and Epidemiology, Perelman School of Medicine, University of Pennsylvania; S.R. Pennington, PhD, Professor of Proteomics, Conway Institute for Biomolecular Research, University College Dublin; M. de Wit, PhD, Patient Research Partner, Amsterdam; D. O'Sullivan, BE, Patient Research Partner, Our Lady's Hospice and Care Services; P.J. Mease, MD, Swedish Medical Center/Providence-St. Joseph Health and University of Washington; A.W. Armstrong, MD, MPH, University of Southern California; K. Callis Duffin, MD, University of Utah; P.S. Helliwell, DM, PhD, FRCP, University of Leeds, and Bradford Hospitals NHS Foundation Trust; L.J. van Mens, Resident of Rheumatology, Amsterdam University Medical Centers/University of Amsterdam, Department of Clinical Immunology and Rheumatology Amsterdam, Infection & Immunity Institute; C.T. Ritchlin, MD, MPH, Professor of Medicine, Division of Allergy, Immunology, and Rheumatology, University of Rochester Medical Center; O. FitzGerald, MD, FRCPI, FRCP ( UK), Newman Clinical Research Professor, Department of Rheumatology, St. Vincent's University Hospital and Conway Institute for Biomolecular Research, University College Dublin. Prof. FitzGerald and Prof. Ritchlin are joint senior authors.
³ From the School of Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds; Cambridge University Hospitals National Health Service (NHS) Foundation Trust, Cambridge, UK; Division of Rheumatology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA; Department of Medicine, Division of Rheumatology, University of Toronto, Toronto Western Hospital, Krembil Research Institute, Toronto, Ontario, Canada; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA; Conway Institute for Biomolecular Research, University College Dublin, Dublin, Ireland; Patient Research Partner, Our Lady's Hospice and Care Services, Dublin, Ireland; Swedish Medical Center/Providence-St. Joseph Health and University of Washington, Seattle, Washington, USA; University of Southern California, Los Angeles, California; University of Utah, Salt Lake City, Utah, USA; Bradford Hospitals NHS Foundation Trust, Bradford, UK; Amsterdam University Medical Centers/University of Amsterdam, Department of Clinical Immunology and Rheumatology Amsterdam, Infection & Immunity Institute, Amsterdam, the Netherlands; Division of Allergy, Immunology, and Rheumatology, University of Rochester Medical Center, Rochester, New York, USA; Department of Rheumatology, St. Vincent's University Hospital Dublin, Dublin, Ireland. oliver.fitzgerald@ucd.ie.
⁴ R. Waxman, MPH, Research Assistant, School of Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; C. Stober, PhD, MBChB, MRCP, Consultant Rheumatologist, Cambridge University Hospitals NHS Foundation Trust; D.R. Jadon, MBBCh, MRCP, PhD, Director of Rheumatology Research Unit, Cambridge University Hospitals NHS Foundation Trust; A.M. Orbai, MD, MHS, Assistant Professor of Medicine, Director Psoriatic Arthritis Program, Division of Rheumatology, Johns Hopkins University School of Medicine; V. Chandran, MBBS, MD, DM, PhD, Department of Medicine, Division of Rheumatology, University of Toronto, Toronto Western Hospital, Krembil Research Institute; A. Ogdie, MD, Assistant Professor of Medicine and Epidemiology, Perelman School of Medicine, University of Pennsylvania; S.R. Pennington, PhD, Professor of Proteomics, Conway Institute for Biomolecular Research, University College Dublin; M. de Wit, PhD, Patient Research Partner, Amsterdam; D. O'Sullivan, BE, Patient Research Partner, Our Lady's Hospice and Care Services; P.J. Mease, MD, Swedish Medical Center/Providence-St. Joseph Health and University of Washington; A.W. Armstrong, MD, MPH, University of Southern California; K. Callis Duffin, MD, University of Utah; P.S. Helliwell, DM, PhD, FRCP, University of Leeds, and Bradford Hospitals NHS Foundation Trust; L.J. van Mens, Resident of Rheumatology, Amsterdam University Medical Centers/University of Amsterdam, Department of Clinical Immunology and Rheumatology Amsterdam, Infection & Immunity Institute; C.T. Ritchlin, MD, MPH, Professor of Medicine, Division of Allergy, Immunology, and Rheumatology, University of Rochester Medical Center; O. FitzGerald, MD, FRCPI, FRCP ( UK), Newman Clinical Research Professor, Department of Rheumatology, St. Vincent's University Hospital and Conway Institute for Biomolecular Research, University College Dublin. Prof. FitzGerald and Prof. Ritchlin are joint senior authors. oliver.fitzgerald@ucd.ie.

PMID: 32482764
DOI: 10.3899/jrheum.200123

Abstract

At the 2019 Group for Research and Assessment of Psoriasis and Psoriatic Arthritis-Collaborative Research Network annual meeting, the group presented its progress in selecting a database platform; items to include in an electronic case report form (eCRF); and standardized operating procedures (SOP) for the collection, processing, storage, and transport of biomaterial. A pilot investigator-initiated study was also proposed that, in addition to addressing an area of unmet need, would allow for the testing of both the eCRF and SOP.

Keywords: BIOMARKERS; GRAPPA; PSORIASIS; PSORIATIC ARTHRITIS; RESEARCH.

Publication types

Congress

MeSH terms

Arthritis, Psoriatic*
Biocompatible Materials
Data Management
Databases, Factual
Humans
Psoriasis*
Reference Standards
Research Personnel

Substances

Biocompatible Materials