The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer

J Fam Nurs. 2020 Aug;26(3):254-268. doi: 10.1177/1074840720938314. Epub 2020 Jul 18.

Abstract

Relationship strains between families and providers can have intense repercussions on the bereavement experience. Little is known about how to define and differentiate relationships within various interpersonal contexts and how those families manifest their bereavement. Therefore, the purpose of this study was to understand parental experiences about their relationships with providers at their child's end of life with cancer and describe the manifestations of their grief. In this hermeneutic study, data were collected through interviews with bereaved parents and observation of families and health care providers in the hospital setting. Parents variously experienced complex relationships characterized by support, collaboration, trust, silence, deterioration, hierarchy, and tolerating, which were interchangeable and varied overtime, as new meanings were incorporated into their experiences. Through better understanding of the nature of these relationships, nurses can provide leadership in research and practice for identifying consequences of their care.

Keywords: bereavement; cancer; child care; end-of-life care; family nursing; grief; parents; professional–family relations.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Bereavement*
  • Child
  • Child, Preschool
  • Family Nursing*
  • Female
  • Grief*
  • Health Personnel / psychology*
  • Humans
  • Infant
  • Infant, Newborn
  • Male
  • Middle Aged
  • Neoplasms / psychology*
  • Parents / psychology*
  • Professional-Family Relations*
  • Social Support
  • Terminal Care / psychology*