Update of the genotype and phenotype of KMT2D and KDM6A by genetic screening of 100 patients with clinically suspected Kabuki syndrome

Am J Med Genet A. 2020 Oct;182(10):2333-2344. doi: 10.1002/ajmg.a.61793. Epub 2020 Aug 17.

Abstract

Kabuki syndrome is characterized by a variable degree of intellectual disability, characteristic facial features, and complications in various organs. Many variants have been identified in two causative genes, that is, lysine methyltransferase 2D (KMT2D) and lysine demethylase 6A (KDM6A). In this study, we present the results of genetic screening of 100 patients with a suspected diagnosis of Kabuki syndrome in our center from July 2010 to June 2018. We identified 76 variants (43 novel) in KMT2D and 4 variants (3 novel) in KDM6A as pathogenic or likely pathogenic. Rare variants included a deep splicing variant (c.14000-8C>G) confirmed by RNA sequencing and an 18% mosaicism level for a KMT2D mutation. We also characterized a case with a blended phenotype consisting of Kabuki syndrome, osteogenesis imperfecta, and 16p13.11 microdeletion. We summarized the clinical phenotypes of 44 patients including a patient who developed cervical cancer of unknown origin at 16 years of age. This study presents important details of patients with Kabuki syndrome including rare clinical cases and expands our genetic understanding of this syndrome, which will help clinicians and researchers better manage and understand patients with Kabuki syndrome they may encounter.

Keywords: Kabuki syndrome; blended phenotype; deep splicing variant; malignancy; mosaicism.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Abnormalities, Multiple* / epidemiology
  • Abnormalities, Multiple* / genetics
  • Abnormalities, Multiple* / pathology
  • Adolescent
  • Adult
  • DNA-Binding Proteins* / genetics
  • Face / abnormalities
  • Face / pathology
  • Female
  • Genetic Heterogeneity
  • Genetic Predisposition to Disease
  • Genetic Testing / methods
  • Genotype
  • Hematologic Diseases* / complications
  • Hematologic Diseases* / epidemiology
  • Hematologic Diseases* / genetics
  • Hematologic Diseases* / pathology
  • Histone Demethylases* / genetics
  • Humans
  • Male
  • Mutation
  • Neoplasm Proteins* / genetics
  • Phenotype
  • Uterine Cervical Neoplasms* / complications
  • Uterine Cervical Neoplasms* / epidemiology
  • Uterine Cervical Neoplasms* / genetics
  • Uterine Cervical Neoplasms* / pathology
  • Vestibular Diseases* / complications
  • Vestibular Diseases* / epidemiology
  • Vestibular Diseases* / genetics
  • Vestibular Diseases* / pathology
  • Young Adult

Substances

  • DNA-Binding Proteins
  • Histone Demethylases
  • KDM6A protein, human
  • KMT2D protein, human
  • Neoplasm Proteins

Supplementary concepts

  • Kabuki syndrome