Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018

Andrea Denny; Marissa Streitz; Kristin Stock; Joyce E Balls-Berry; Lisa L Barnes; Goldie S Byrd; Raina Croff; Sujuan Gao; Crystal M Glover; Hugh C Hendrie; William T Hu; Jennifer J Manly; Krista L Moulder; Susan Stark; Stephen B Thomas; Rachel Whitmer; Roger Wong; John C Morris; Jennifer H Lingler

doi:10.1002/alz.12160

Perspective on the "African American participation in Alzheimer disease research: Effective strategies" workshop, 2018

Alzheimers Dement. 2020 Dec;16(12):1734-1744. doi: 10.1002/alz.12160. Epub 2020 Aug 17.

Authors

Andrea Denny¹, Marissa Streitz¹, Kristin Stock², Joyce E Balls-Berry¹, Lisa L Barnes³, Goldie S Byrd⁴, Raina Croff⁵, Sujuan Gao⁶, Crystal M Glover³, Hugh C Hendrie⁷, William T Hu⁸, Jennifer J Manly⁹, Krista L Moulder¹, Susan Stark¹⁰, Stephen B Thomas¹¹, Rachel Whitmer¹², Roger Wong¹³, John C Morris¹⁴, Jennifer H Lingler¹⁵

Affiliations

¹ Knight Alzheimer Disease Research Center, Washington University School of Medicine, Saint Louis, Missouri, USA.
² Washington University in Saint Louis, Saint Louis, Missouri, USA.
³ Rush Alzheimer's Disease Center, Rush University Medical Center, Chicago, Illinois, USA.
⁴ Maya Angelou Center for Health Equity, Wake Forest University School of Medicine, Winston-Salem, North Carolina, USA.
⁵ Layton Aging & Alzheimer's Disease Center, Department of Neurology, Oregon Health and Science University, Portland, Oregon, USA.
⁶ Department of Biostatistics, Indiana University School of Medicine, Indianapolis, Indiana, USA.
⁷ Department of Psychiatry, Indiana University School of Medicine, Indianapolis, Indiana, USA.
⁸ Emory University, Atlanta, Georgia, USA.
⁹ Department of Neurology, Taub Institute for Research on Alzheimer's Disease and the Aging Brain, Columbia University Medical Center, New York, New York, USA.
¹⁰ Department of Occupational Therapy, Washington University School of Medicine, Saint Louis, Missouri, USA.
¹¹ Maryland Center for Health Equity, University of Maryland College Park, College Park, Maryland, USA.
¹² Alzheimer's Disease Research Center, UC Davis School of Medicine, Sacramento, California, USA.
¹³ Public Health Sciences Brown School, Washington University in Saint Louis, Saint Louis, Missouri, USA.
¹⁴ Knight Alzheimer Disease Research Center, Harvey A & Dorismae Hacker Friedman Distinguished Professor of Neurology, Washington University School of Medicine, Saint Louis, Missouri, USA.
¹⁵ School of Nursing and Alzheimer's Disease Research Center, School of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.

Abstract

The Washington University School of Medicine Knight Alzheimer Disease Research Center's "African American Participation in Alzheimer Disease Research: Effective Strategies" Workshop convened to address a major limitation of the ongoing scientific progress regarding Alzheimer's disease and related dementias (ADRD): participants in most ADRD research programs overwhelmingly have been limited to non-Hispanic white persons, thus precluding knowledge as to how ADRD may be represented in non-white individuals. Factors that may contribute to successful recruitment and retention of African Americans into ADRD research were discussed and organized into actionable next steps as described within this report.

Keywords: African American; Alzheimer disease; disparities; racial differences; recruitment; recruitment strategies.

Publication types

Research Support, N.I.H., Extramural

MeSH terms

Aged
Alzheimer Disease / ethnology*
Black or African American / statistics & numerical data*
Clinical Trials as Topic*
Female
Humans
Male
Patient Selection*
United States

Abstract

Publication types

MeSH terms

Grants and funding