Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-based Early Psychosis Web Resource with Young Adults

Prog Community Health Partnersh. 2020;14(4):471-480. doi: 10.1353/cpr.2020.0052.

Abstract

Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.

Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, webbased, recovery resource.

Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it.

Lessons learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers.

Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult coresearchers. We strongly recommend including YA who have experienced EP as co-researchers.

Publication types

  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Community-Based Participatory Research*
  • Humans
  • Peer Group
  • Psychotic Disorders* / diagnosis
  • Psychotic Disorders* / therapy
  • Research Personnel
  • Universities
  • Young Adult