[Long-term nursing care of the adult sickle cell patient]

Abstract

Sickle cell disease is a genetic and chronic disease that requires multidisciplinary care. This requires investment on the part of both the patient and the entire health care team. In most cases, the sickle cell patient is diagnosed about two months after birth. The care pathway for adults is a continuation of the work done in paediatrics. The chronic nature of the disease means that patients are regularly admitted to hospital, which has an impact on their personal and professional lives. Appropriate nursing support helps to improve their daily lives.

Keywords: chronic disease; confiance; connaissance; drépanocytose; knowledge; maladie chronique; nursing; sickle cell disease; soin infirmier; trust.