Effect of Children's Autism Spectrum Disorder Severity on Family Strain and Sleep Quality: A Cross-Sectional Online Survey in the U.S

J Autism Dev Disord. 2023 May;53(5):1795-1808. doi: 10.1007/s10803-022-05457-7. Epub 2022 Feb 3.

Abstract

To better understand the impact of children's autism spectrum disorder (ASD) severity on families, we evaluated pathways through which ASD severity affected child sleep quality, caregiver strain, and caregiver sleep quality. In a cross-sectional analysis through the U.S.-wide Simons Foundation Powering Autism Research for Knowledge (SPARK) cohort. Participants were caregivers of dependents with ASD aged 3-17 years (N = 3150). We found that increased severity strongly affects caregiver strain and child sleep quality. Child sleep quality was a minor mediator of increasing caregiver strain. Caregiver sleep quality depended on ASD severity only through child sleep quality and caregiver strain. Interventions aimed at improving child sleep quality or reducing caregiver strain could positively impact families of children with ASD.

Keywords: Autism Impact Measure; Autism spectrum disorder; Caregiver strain; Child health; Severity; Sleep quality.

MeSH terms

  • Autism Spectrum Disorder*
  • Autistic Disorder*
  • Caregivers
  • Child
  • Cross-Sectional Studies
  • Humans
  • Sleep Quality
  • Sleep Wake Disorders*