Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities

Autism. 2022 Nov;26(8):1931-1946. doi: 10.1177/13623613221113501. Epub 2022 Jul 28.

Abstract

Although the prevalence of autism has been rising in recent years, disparities in diagnosis still remain. Female and Black populations in the United States are diagnosed later, are more likely to have an intellectual disability, and are excluded from research as well as services designed for autistic individuals. Autistic Black girls are effectively invisible in the current scientific literature. Intersectional theory, which looks at a person as a whole, examines models that are inclusive toward diverse gender, ability, and racial/ethnic backgrounds. This theory may be a useful approach to clinical and research work with autism so that practitioners may be most effective for the whole population of autistic people. The authors recommend research focusing on inclusion of autistic populations with intellectual disability and research studies that include evaluations as part of the procedure. Clinically, the authors recommend a focus on screening all young children for autism and improving provider knowledge in working with diverse autistic populations.

Keywords: African American; autism spectrum disorders; diagnosis; diversity; gender; health disparity; intellectual disability; intersectional; race; systemic inequality.

Publication types

  • Review

MeSH terms

  • Autism Spectrum Disorder* / epidemiology
  • Autistic Disorder* / diagnosis
  • Child
  • Child, Preschool
  • Ethnicity
  • Female
  • Humans
  • Intellectual Disability*
  • Racial Groups
  • United States