Summary of Research: Collaboration Between Healthcare Professionals and People with Multiple Sclerosis to Develop Communication Tools to Improve the Standard of Multiple Sclerosis Care

Celia Oreja-Guevara; Stanca Potra; Birgit Bauer; Diego Centonze; Maria-Paz Giambastiani; Gavin Giovannoni; Jϋrg Kesselring; Dawn Langdon; Sarah Morrow; Jocelyne Nouvet-Gire; Maija Pontaga; Peter Rieckmann; Sven Schippling; Nektaria Alexandri; Jane Shanahan; Heidi Thompson; Pieter van Galen; Patrick Vermersch; David Yeandle

doi:10.1007/s12325-023-02638-3

Summary of Research: Collaboration Between Healthcare Professionals and People with Multiple Sclerosis to Develop Communication Tools to Improve the Standard of Multiple Sclerosis Care

Adv Ther. 2023 Dec;40(12):5131-5136. doi: 10.1007/s12325-023-02638-3. Epub 2023 Oct 9.

Authors

Celia Oreja-Guevara¹, Stanca Potra², Birgit Bauer³, Diego Centonze⁴, Maria-Paz Giambastiani⁵, Gavin Giovannoni⁶, Jϋrg Kesselring⁷, Dawn Langdon⁸, Sarah Morrow⁹, Jocelyne Nouvet-Gire¹⁰, Maija Pontaga¹¹, Peter Rieckmann¹², Sven Schippling¹³, Nektaria Alexandri¹⁴, Jane Shanahan¹⁵, Heidi Thompson¹⁶, Pieter van Galen¹⁷, Patrick Vermersch¹⁸, David Yeandle¹⁹

Affiliations

¹ Departamento de Medicina, Servicio de Neurología, Hospital Clínico San Carlos, IdISSC, Universidad Complutense, Madrid, Spain. orejacbn@gmail.com.
² MS in the 21st Century Steering Group, Bucharest, Romania.
³ MS in the 21st Century Steering Group, Berlin, Germany.
⁴ Unit of Neurology, IRCCS Neuromed, Pozzilli, IS, Italy.
⁵ MS in the 21st Century Steering Group, Bilbao, Spain.
⁶ Blizard Institute, Barts and the London School of Medicine and Dentistry, London, UK.
⁷ Department of Neurology and Neurorehabilitation, Kliniken Valens, Valens, Switzerland.
⁸ Royal Holloway, University of London, London, UK.
⁹ Western University, London, ON, Canada.
¹⁰ MS in the 21st Century Steering Group, Paris, France.
¹¹ MS in the 21st Century Steering Group, Riga, Latvia.
¹² Medical Park, Loipl, Bischofswiesen, Germany.
¹³ Universitätsspital Zürich, Zurich, Switzerland.
¹⁴ Global Medical Affairs, Neurology and Immunology, The healthcare business of Merck KGaA, Darmstadt, Germany.
¹⁵ MS in the 21st Century Steering Group, Ascot, UK.
¹⁶ Craigavon Hospital, Portadown, UK.
¹⁷ MS in the 21st Century Steering Group, Brussels, Belgium.
¹⁸ University of Lille, Inserm U1172 LilNCog, CHU Lille, FHU Precise, Lille, France.
¹⁹ MS in the 21st Century Steering Group, Southampton, UK.

Abstract

This is a summary of a previously published paper: Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. It describes a collaboration between people with multiple sclerosis (PwMS) and healthcare professionals (HCPs) to identify challenges in multiple sclerosis (MS) care and design tools to improve communication during consultations.

Keywords: Communication tools; MS care; Neurology; Shared decision-making.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Communication
Delivery of Health Care
Health Personnel
Humans
Multiple Sclerosis* / therapy
Patients