Co-design of an intervention exploring meaning and purpose after spinal cord injury

Disabil Rehabil. 2024 Nov;46(22):5243-5252. doi: 10.1080/09638288.2023.2300655. Epub 2024 Jan 23.

Abstract

Purpose: Rebuilding a strong sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury. This project aimed to develop an intervention that used the concept of post-traumatic growth to foster a stronger sense of meaning and purpose in people with a spinal cord injury.

Methods: Using participatory action research methodology, the intervention was designed in an iterative process with health professionals and people with lived experience of spinal cord injury. We developed a ten-week online group program and delivered two pilot programs to 13 participants. We used their feedback to further refine the program before finalisation.

Results: A participatory action research approach resulted in a positive intervention well received by participants and consumer organisations. Feedback suggests the intervention shows promise for improvements in functional and psychosocial outcomes and has long-term viability.

Conclusions: The project successfully developed and delivered a novel program that uses the concept of post-traumatic growth to foster a stronger sense of meaning and purpose. Further implementation of the program with larger numbers will allow for evaluation of the program's effectiveness.

Keywords: Meaning; co-design; post-traumatic growth; purpose; spinal cord injury.

Plain language summary

Group-based intervention programs based on principles of post-traumatic growth can help people with spinal cord injury explore meaning and purpose.Co-design, development and implementation of interventions help to ensure such programs appeal to consumers, meet their needs, and are sustainable.Interventions can be delivered effectively online.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Female
  • Health Services Research
  • Humans
  • Male
  • Middle Aged
  • Pilot Projects
  • Posttraumatic Growth, Psychological
  • Program Development
  • Spinal Cord Injuries* / psychology
  • Spinal Cord Injuries* / rehabilitation