Nasal polyp syndrome: a patient-centred term for CRSwNP by EUFOREA

T Teeling; C Djouder; H Laurens; J H Preyra; C M E Shire; E Van Staeyen; D M Conti; G K Scadding; P W Hellings

doi:10.3389/falgy.2024.1372919

Nasal polyp syndrome: a patient-centred term for CRSwNP by EUFOREA

Front Allergy. 2024 Mar 20:5:1372919. doi: 10.3389/falgy.2024.1372919. eCollection 2024.

Authors

T Teeling¹, C Djouder¹, H Laurens¹, J H Preyra¹, C M E Shire¹, E Van Staeyen², D M Conti^{2

3}, G K Scadding^{4

5}, P W Hellings^{6

7

8}

Affiliations

¹ Patient Advisory Board of the European Forum for Research and Education in Allergy and Airway Diseases, Brussels, Belgium.
² The European Forum for Research and Education in Allergy and Airway Diseases Scientific Expert Team Members, Brussels, Belgium.
³ Escuela de Doctorado UAM, Centro de Estudios de Posgrado, Universidad Autónoma de Madrid, Calle Francisco Tomás y Valiente, n° 2. Ciudad Universitaria de Cantoblanco, Madrid, Spain.
⁴ Department of Allergy & Rhinology, Royal National ENT Hospital, London, United Kingdom.
⁵ Division of Immunity and Infection, University College, London, United Kingdom.
⁶ Allergy and Clinical Immunology Research Unit, Department of Microbiology and Immunology, KU Leuven, Leuven, Belgium.
⁷ Clinical Department of Otorhinolaryngology, Head and Neck Surgery, University Hospitals Leuven, Leuven, Belgium.
⁸ Department of Otorhinolaryngology, Laboratory of Upper Airways Research, University of Ghent, Ghent, Belgium.

Abstract

Chronic Rhinosinusitis with Nasal Polyps (CRSwNP) is a chronic inflammatory disease of the nose and paranasal sinus cavities that significantly affects well-being and social function, particularly in young adults and middle-aged populations. CRSwNP is a common health condition in the Western world, with an estimated prevalence of 3%. Despite worldwide evidence-based treatment guidelines such as the European Position Paper on Rhinosinusitis and Nasal Polyps (EPOS) 2020 and the European Forum for Research and Education in Allergy and Airway Diseases (EUFOREA) chronic rhinosinusitis (CRS) pocket guide, a significant number of patients remain undiagnosed and/or uncontrolled with repeated oral corticosteroids (OCS) treatments and/or (multiple) endoscopic sinus surgeries (ESS).

Keywords: CRSwNP; EUFOREA; Nasal Polyp Syndrome; global CRSwNP awareness day; lay language; patient advisory board; patient-provider communications.

Grants and funding

The author(s) declare that no financial support was received for the research, authorship, and/or publication of this article.