Sociocultural Factors Influence on Burden and Stress of Caregivers of Children with Epilepsy

Can J Neurol Sci. 2024 May 24:1-5. doi: 10.1017/cjn.2024.271. Online ahead of print.

Abstract

We evaluated stress and burden in epilepsy patient caregivers in a pediatric neurology clinic. Caregivers of 102 children with epilepsy completed the Caregivers' Assessment of Difficulty Index and a questionnaire regarding caregiver sociocultural characteristics. A multiple linear regression statistical analysis found that caregiver burden was significantly increased for those who had a second child with a chronic disease, sole caregivers and for those with children with drug-resistant epilepsy. Caregiver stress was significantly increased for caregivers with a native language other than English or French, caregivers who had a second child with a chronic disease and sole caregivers.

Keywords: Caregiving; epilepsy; epilepsy – pediatric; neurology – pediatric; pediatric neurology.