Survival to Young Adulthood Among Individuals With Congenital Heart Defects and Genetic Syndromes: Congenital Heart Survey to Recognize Outcomes, Needs, and Well-Being

J Am Heart Assoc. 2024 Aug 6;13(15):e036049. doi: 10.1161/JAHA.124.036049. Epub 2024 Jul 31.

¹ National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention Atlanta GA.
² Medical Genetics, Massachusetts General Hospital for Children Boston MA.
³ Department of Epidemiology, Fay W Boozman College of Public Health and the Arkansas Center for Birth Defects Research and Prevention University of Arkansas for Medical Sciences Little Rock AR.
⁴ Department of Pediatrics University of Arizona Tucson AZ.
⁵ Department of Health Policy and Management Fay W Boozman College of Public Health, University of Arkansas for Medical Sciences Little Rock AR.
⁶ Children's Healthcare of Atlanta and Emory University School of Medicine Atlanta GA.

No abstract available

Keywords: 22q11 deletion syndrome; Turner syndrome; congenital heart defects; genetic syndromes; mortality; survival; trisomy syndromes.

MeSH terms