Feasibility, acceptability, and effects of a web-delivered behavioral parent training intervention for rural parents of children with autism spectrum disorder: A protocol

PLoS One. 2024 Aug 27;19(8):e0307273. doi: 10.1371/journal.pone.0307273. eCollection 2024.

Abstract

Caregivers of children with autism spectrum disorder (ASD) often report higher levels of stress and mental health issues. Support services and parent training programs may help buffer the effects of caring for a child with ASD. However, due to the national lack of trained ASD providers and disparity of ASD support resources available in rural areas, caregivers often go without support. A possible solution to reach caregivers in rural areas is web-based interventions. This paper describes an ongoing pilot study examining the feasibility, acceptability, and preliminary effects on caregiver well-being and disruptive child behaviors for a web-based parent training program (Attend Behavior) for caregivers of young children (ages 2-11 years old) with autism spectrum disorder (ASD) living in rural areas (trial registration NCT05554198). The intervention is available on the internet as well as a downloadable app for mobile phones. Participants will be invited to use the intervention program for 12-weeks. Prior to using the program, participants will be asked to take a baseline survey assessing depressive symptoms (PROMIS Depression Short Form-6a), caregiver stress (Parenting Stress Index-Short Form), child disruptive behaviors (Home Situations Questionnaire-ASD and Aberrant Behavior Checklist). After 12-weeks, participants will be asked to complete a post-intervention survey with the same measurement scales plus questions regarding intervention acceptability, appropriateness, and feasibility (Acceptability of Intervention, Intervention Appropriateness Measure, and the Feasibility of Intervention Measure). Participants are also invited to partake in a brief 1:1 interview with a study team member to give further feedback regarding the intervention. Study retention and participant app usage data will be examined. Information generated from this pilot study will be used to inform a future larger scale randomized control trial of Attend Behavior.

Publication types

  • Clinical Study

MeSH terms

  • Autism Spectrum Disorder* / psychology
  • Autism Spectrum Disorder* / therapy
  • Caregivers* / education
  • Caregivers* / psychology
  • Child
  • Child, Preschool
  • Feasibility Studies*
  • Female
  • Humans
  • Internet
  • Internet-Based Intervention
  • Male
  • Parents* / education
  • Parents* / psychology
  • Pilot Projects
  • Rural Population*
  • Stress, Psychological / therapy

Grants and funding

The project described was supported by a Path to K award from The Ohio State University’s Office of Health Sciences and the Center for Clinical and Translational Science. The content is solely the responsibility of the authors and does not necessarily represent the official views of the university, or the Center for Clinical and Translational Science. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.