The experiences of living with multiple myeloma and a palliative approach to care: A grounded theory study

Can Oncol Nurs J. 2024 Nov 1;34(4):539-561. doi: 10.5737/23688076344539. eCollection 2024 Fall.
[Article in English, English]

Abstract

Purpose: Multiple myeloma is an incurable hematologic cancer. A palliative approach to care can be used in conjunction with curative therapy to alleviate suffering, but is underutilized in the hemato- oncology population. The purpose of this study was to explore living with multiple myeloma and individuals' experiences with, and perceptions of a palliative approach in their care.

Methods: Straussian grounded theory was employed. Ten individuals with multiple myeloma participated between October 2021 and May 2022.

Results: A theoretical model depicting the process of living with multiple myeloma was developed. Seven categories emerged from the data, as well as a core category: 'existing in the liminal space between living with and dying from multiple myeloma'. Results demonstrate that a palliative approach to care was inconsistently utilized.

Conclusions: The model designed from the participant data offers an explanation of the process of living with multiple myeloma and how a palliative approach to care can be utilized to help these individuals.

Keywords: grounded theory; multiple myeloma; palliative approach to care.