Using patient-generated health data more efficient and effectively to facilitate the implementation of value-based healthcare in the EU - Innovation report

Frans Folkvord; Jim Ingebretsen Carlson; Manuel Ottaviano; Diego Carvajal; Liss Hernandez Gonzalez; Rens van de Schoot; Eva Turk; Jordi Piera-Jiménez; Caridad Pontes; Marina Ramiro-Pareta; Gerard Carot-Sans; Eva Podovšovnik; Vesna Levašič; Kathrin Scheckenbach; Martin Wagenmann; Aron Szpisjak; Bogi Eliasen; Joe-Max Wakim; Martin Ernst; Yvonne Prinzellner; Nadine Bol; Linwei He; Emiel Krahmer; Clàudia Navarro; Laia Juan; Davide Guerri; Laura Pinna; Carmela Genovese; Luciano Benetti; Chiara Macagnano; Franco Chiarugi; Johannes Peeters; Ludovico Pedullà; Giampaolo Brichetto; Paola Zaratin; Seldag Gunes Peschke; Lutz Peschke; Giuseppe Fico

doi:10.1016/j.csbj.2024.10.026

Using patient-generated health data more efficient and effectively to facilitate the implementation of value-based healthcare in the EU - Innovation report

Comput Struct Biotechnol J. 2024 Oct 18:24:672-678. doi: 10.1016/j.csbj.2024.10.026. eCollection 2024 Dec.

Authors

Frans Folkvord^{1

2}, Jim Ingebretsen Carlson², Manuel Ottaviano³, Diego Carvajal³, Liss Hernandez Gonzalez³, Rens van de Schoot⁴, Eva Turk⁵, Jordi Piera-Jiménez^{6

7}, Caridad Pontes^{7

8}, Marina Ramiro-Pareta⁷, Gerard Carot-Sans^{6

7}, Eva Podovšovnik⁹, Vesna Levašič⁹, Kathrin Scheckenbach¹⁰, Martin Wagenmann¹⁰, Aron Szpisjak¹¹, Bogi Eliasen¹¹, Joe-Max Wakim¹¹, Martin Ernst⁵, Yvonne Prinzellner⁵, Nadine Bol¹, Linwei He¹, Emiel Krahmer¹, Clàudia Navarro¹², Laia Juan¹², Davide Guerri¹³, Laura Pinna¹³, Carmela Genovese¹³, Luciano Benetti¹³, Chiara Macagnano¹³, Franco Chiarugi¹³, Johannes Peeters¹⁴, Ludovico Pedullà¹⁵, Giampaolo Brichetto^{15

16}, Paola Zaratin¹⁵, Seldag Gunes Peschke¹⁷, Lutz Peschke¹⁸, Giuseppe Fico³

Affiliations

¹ Tilburg School of Humanities and Digital Sciences, Communication and Information Science, Tilburg University, the Netherlands.
² PredictBy, Barcelona, Spain.
³ Life Supporting Technologies, Photonics Technology and Bioengineering Department, School of Telecommunication Engineering, Universidad Politécnica de Madrid, Madrid, Spain.
⁴ Department of Methodology and Statistics, Faculty of Social and Behavioral Sciences, Utrecht University, Utrecht, the Netherlands.
⁵ Centre for digital health and social innovation, University of Applied Sciences St.Pölten, Austria.
⁶ Catalan Health Service, Barcelona, Spain.
⁷ Digitalization for the Sustainability of the Healthcare System (DS3), Barcelona, Spain.
⁸ Departament de Farmacologia, de Terapèutica i de Toxicologia. Universitat Autònoma de Barcelona, Barcelona, Spain.
⁹ Ortopedska bolnišnica Valdoltra, Ankaran, Slovenia.
¹⁰ Dept. of Otorhinolaryngology, Düsseldorf University Hospital, Düsseldorf, Germany.
¹¹ Copenhagen Institute for Futures Studies, Copenhagen, Denmark.
¹² Medtronic Ibérica, Madrid, Spain.
¹³ Dedalus Italia S.p.A., Florence, Italy.
¹⁴ MR Clinical Science, Philips Healthcare, Best, the Netherlands.
¹⁵ Scientific Research Area, Italian Multiple Sclerosis Foundation, Genoa, Italy.
¹⁶ AISM Rehabilitation Service, Italian Multiple Sclerosis Society, Genoa, Italy.
¹⁷ Faculty of Law, Ankara Yıldırım Beyazıt University, Ankara, Turkey.
¹⁸ Department of Communication and Design, Bilkent University, Ankara, Turkey.

Abstract

Healthcare services and products are rapidly changing due to the development of new technologies, offering relevant solutions to improve patient outcomes. Patient-Generated Health Data and knowledge-sharing across the European Union (EU) has a great potential of making healthcare provision more effective and efficient by putting the patient at the centre of the healthcare process. While such initiatives have been taken before, a uniting and overarching approach is still missing. The EU-funded IMPROVE project will develop an evidence-based and actual framework to effectively leverage the added value of people-centred integrated healthcare solutions, using predominantly PROMs, PPI, PREMs, and other Patient-Generated Health Data (PGHD). As a result, the project facilitates the effective and efficient implementation of Value-Based Healthcare across the EU by putting the patient central in the healthcare process.

Keywords: Digital Health; Health Technology; Patient Quality of Life; Patient-Generated Health Data; Patient-Reported Experience Measures; Patient-Reported Outcomes Measures; Value-Based Healthcare.