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208 results

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Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
National Heart, Lung, and Blood Institute working group; Fabsitz RR, McGuire A, Sharp RR, Puggal M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, Fullerton SM, Gabriel S, Gachupin F, James C, Jarvik GP, Kittles R, Leib JR, O'Donnell C, O'Rourke PP, Rodriguez LL, Schully SD, Shuldiner AR, Sze RK, Thakuria JV, Wolf SM, Burke GL. National Heart, Lung, and Blood Institute working group, et al. Among authors: fernandez cv. Circ Cardiovasc Genet. 2010 Dec;3(6):574-80. doi: 10.1161/CIRCGENETICS.110.958827. Circ Cardiovasc Genet. 2010. PMID: 21156933 Free PMC article.
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Wolf SM, et al. Among authors: fernandez cv. J Law Med Ethics. 2015 Fall;43(3):440-63. doi: 10.1111/jlme.12288. J Law Med Ethics. 2015. PMID: 26479555 Free PMC article.
Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, Wilfond BS. Wolf SM, et al. Among authors: fernandez cv. J Law Med Ethics. 2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27. J Law Med Ethics. 2018. PMID: 30008546 Free PMC article. No abstract available.
Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group.
Fernandez CV, Ruccione K, Wells RJ, Long JB, Pelletier W, Hooke MC, Pentz RD, Noll RB, Baker JN, O'Leary M, Reaman G, Adamson PC, Joffe S; COG Return of Results Task Force. Fernandez CV, et al. J Clin Oncol. 2012 Dec 20;30(36):4573-9. doi: 10.1200/JCO.2012.45.2086. Epub 2012 Oct 29. J Clin Oncol. 2012. PMID: 23109703 Free PMC article.
208 results