McCormack P - Search Results

1

Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational.

McCormack P, Woods S, Aartsma-Rus A, Hagger L, Herczegfalvi A, Heslop E, Irwin J, Kirschner J, Moeschen P, Muntoni F, Ouillade MC, Rahbek J, Rehmann-Sutter C, Rouault F, Sejersen T, Vroom E, Straub V, Bushby K, Ferlini A. McCormack P, et al. PLoS Curr. 2013 Jan 10;5:ecurrents.md.f90b49429fa814bd26c5b22b13d773ec. doi: 10.1371/currents.md.f90b49429fa814bd26c5b22b13d773ec. PLoS Curr. 2013. PMID: 23330068 Free PMC article.

2

The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on September 25th 2009.

Muntoni F; Meeting Steering Committee and TREAT-NMD Network. Muntoni F, et al. Neuromuscul Disord. 2010 May;20(5):355-62. doi: 10.1016/j.nmd.2010.03.005. Epub 2010 Mar 26. Neuromuscul Disord. 2010. PMID: 20347306 No abstract available.

3

Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials.

Woods S, McCormack P. Woods S, et al. Among authors: mccormack p. Bioethics. 2013 Jun;27(5):243-50. doi: 10.1111/j.1467-8519.2011.01945.x. Epub 2012 Feb 2. Bioethics. 2013. PMID: 22296646

4

Therapeutic misconception: hope, trust and misconception in paediatric research.

Woods S, Hagger LE, McCormack P. Woods S, et al. Among authors: mccormack p. Health Care Anal. 2014 Mar;22(1):3-21. doi: 10.1007/s10728-012-0201-8. Health Care Anal. 2014. PMID: 22350619 Review.

5

The therapeutic misconception, decision making and informed consent: the ethics of trial participation for neuromuscular disorders.

McCormack P, Woods S, Hagger L. McCormack P, et al. Neuromuscul Disord. 2012 Feb;22(2):191-2. doi: 10.1016/j.nmd.2011.06.749. Neuromuscul Disord. 2012. PMID: 22396960 No abstract available.

6

International Charter of principles for sharing bio-specimens and data.

Mascalzoni D, Dove ES, Rubinstein Y, Dawkins HJ, Kole A, McCormack P, Woods S, Riess O, Schaefer F, Lochmüller H, Knoppers BM, Hansson M. Mascalzoni D, et al. Among authors: mccormack p. Eur J Hum Genet. 2015 Jun;23(6):721-8. doi: 10.1038/ejhg.2014.197. Epub 2014 Sep 24. Eur J Hum Genet. 2015. PMID: 25248399 Free PMC article.

7

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.

Gainotti S, Turner C, Woods S, Kole A, McCormack P, Lochmüller H, Riess O, Straub V, Posada M, Taruscio D, Mascalzoni D. Gainotti S, et al. Among authors: mccormack p. Eur J Hum Genet. 2016 Aug;24(9):1248-54. doi: 10.1038/ejhg.2016.2. Epub 2016 Feb 10. Eur J Hum Genet. 2016. PMID: 26860059 Free PMC article.

8

'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.

McCormack P, Kole A, Gainotti S, Mascalzoni D, Molster C, Lochmüller H, Woods S. McCormack P, et al. Eur J Hum Genet. 2016 Oct;24(10):1403-8. doi: 10.1038/ejhg.2016.30. Epub 2016 Apr 6. Eur J Hum Genet. 2016. PMID: 27049302 Free PMC article.

9

New Recommendation on Biological Materials Could Hamper Muscular Dystrophy Research.

McCormack P, Woods S. McCormack P, et al. PLoS Curr. 2016 Dec 21;8:ecurrents.md.f21a7be89ed7fcdc689bf30e97dd2756. doi: 10.1371/currents.md.f21a7be89ed7fcdc689bf30e97dd2756. PLoS Curr. 2016. PMID: 28133562 Free PMC article.

10

International Charter of principles for sharing bio-specimens and data.

Mascalzoni D, Dove ES, Rubinstein Y, Dawkins HJ, Kole A, McCormack P, Woods S, Riess O, Schaefer F, Lochmüller H, Knoppers BM, Hansson M. Mascalzoni D, et al. Among authors: mccormack p. Eur J Hum Genet. 2016 Jul;24(7):1096. doi: 10.1038/ejhg.2015.237. Eur J Hum Genet. 2016. PMID: 27307116 Free PMC article. No abstract available.

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