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Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.
Regnault A, Burlina A, Cunningham A, Bettiol E, Moreau-Stucker F, Benmedjahed K, Bosch AM. Regnault A, et al. Orphanet J Rare Dis. 2015 May 10;10:59. doi: 10.1186/s13023-015-0261-6. Orphanet J Rare Dis. 2015. PMID: 25958326 Free PMC article.
Psychometric Validation of the Newly Developed Phenylketonuria- Quality of Life (Pku-Qol) Questionnaires Assessing the Impact of Phenylketonuria and Its Treatment On Patients' Quality of Life.
Bosch AM, Burlina A, Cunningham A, Bettiol EO, Moreau-Stucker F, Benmedjahed K, Regnault A. Bosch AM, et al. Among authors: regnault a. Value Health. 2014 Nov;17(7):A536. doi: 10.1016/j.jval.2014.08.1715. Epub 2014 Oct 26. Value Health. 2014. PMID: 27201713 Free article. No abstract available.
98 results