Duenas DM - Search Results

1

Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings.

Duenas DM, Shipman KJ, Porter KM, Shuster E, Guerra C, Reyes A, Kauffman TL, Hunter JE, Goddard KAB, Wilfond BS, Kraft SA. Duenas DM, et al. Genet Med. 2022 Mar;24(3):610-621. doi: 10.1016/j.gim.2021.11.017. Epub 2021 Nov 23. Genet Med. 2022. PMID: 34906471 Free PMC article.

2

The evolving landscape of expanded carrier screening: challenges and opportunities.

Kraft SA, Duenas D, Wilfond BS, Goddard KAB. Kraft SA, et al. Genet Med. 2019 Apr;21(4):790-797. doi: 10.1038/s41436-018-0273-4. Epub 2018 Sep 24. Genet Med. 2019. PMID: 30245516 Free PMC article. Review.

3

Exploring Ethical Concerns About Human Challenge Studies: A Qualitative Study of Controlled Human Malaria Infection Study Participants' Motivations and Attitudes.

Kraft SA, Duenas DM, Kublin JG, Shipman KJ, Murphy SC, Shah SK. Kraft SA, et al. Among authors: duenas dm. J Empir Res Hum Res Ethics. 2019 Feb;14(1):49-60. doi: 10.1177/1556264618820219. Epub 2018 Dec 26. J Empir Res Hum Res Ethics. 2019. PMID: 30585505

4

Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.

Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS. Kraft SA, et al. Among authors: duenas dm. Genet Med. 2020 Jun;22(6):1094-1101. doi: 10.1038/s41436-020-0763-z. Epub 2020 Feb 24. Genet Med. 2020. PMID: 32089547 Free PMC article.

5

Greater Than Minimal Risk, No Direct Benefit - Bridging Drug Trials and Novel Therapy in Pediatric Populations.

Wilfond BS, Duenas DM, Johnson LM. Wilfond BS, et al. Among authors: duenas dm. Am J Bioeth. 2020 May;20(4):102-103. doi: 10.1080/15265161.2020.1730488. Am J Bioeth. 2020. PMID: 32208073 Free PMC article. No abstract available.

6

Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?

Johnson LM, Duenas DM, Wilfond BS. Johnson LM, et al. Among authors: duenas dm. Am J Bioeth. 2020 May;20(4):111-113. doi: 10.1080/15265161.2020.1730490. Am J Bioeth. 2020. PMID: 32208077 Free PMC article. No abstract available.

7

Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research.

Duenas DM, Wilfond BS, Johnson LM. Duenas DM, et al. Am J Bioeth. 2020 May;20(4):8-10. doi: 10.1080/15265161.2020.1735868. Am J Bioeth. 2020. PMID: 32208084 Free PMC article. No abstract available.

8

Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships.

Kraft SA, Duenas DM, Lewis H, Shah SK. Kraft SA, et al. Among authors: duenas dm. Am J Bioeth. 2020 Jun;20(5):31-33. doi: 10.1080/15265161.2020.1745936. Am J Bioeth. 2020. PMID: 32364474 Free PMC article. No abstract available.

9

Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms.

Kraft SA, Porter KM, Duenas DM, Sullivan E, Rowland M, Saelens BE, Wilfond BS, Shah SK. Kraft SA, et al. Among authors: duenas dm. JAMA Netw Open. 2020 Jul 1;3(7):e209296. doi: 10.1001/jamanetworkopen.2020.9296. JAMA Netw Open. 2020. PMID: 32735337 Free PMC article.

10

Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent.

Johnson LM, Duenas DM, Wilfond BS. Johnson LM, et al. Among authors: duenas dm. Am J Bioeth. 2020 Oct;20(10):82-83. doi: 10.1080/15265161.2020.1806381. Am J Bioeth. 2020. PMID: 32945745 Free PMC article. No abstract available.

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