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Patient-Reported Impact of Symptoms in Crohn's Disease.
Varma A, Weinstein J, Seabury J, Rosero S, Wagner E, Zizzi C, Luebbe E, Dilek N, McDermott M, Heatwole J, Saubermann L, Temple L, Rogoff S, Heatwole C. Varma A, et al. Among authors: seabury j. Am J Gastroenterol. 2022 Dec 1;117(12):2033-2045. doi: 10.14309/ajg.0000000000001954. Epub 2022 Aug 22. Am J Gastroenterol. 2022. PMID: 36375002 Free PMC article.
Patient-Reported Impact of Symptoms in Friedreich Ataxia.
Seabury J, Alexandrou D, Dilek N, Cohen B, Heatwole J, Larkindale J, Lynch DR, Park C, Rosero S, Subramony SH, Varma A, Wagner E, Walther S, Weinstein J, Wells M, Zizzi C, Heatwole C. Seabury J, et al. Neurology. 2023 Feb 21;100(8):e808-e821. doi: 10.1212/WNL.0000000000201598. Epub 2022 Nov 28. Neurology. 2023. PMID: 36443012 Free PMC article.
Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional study.
Zizzi C, Seabury J, Rosero S, Alexandrou D, Wagner E, Weinstein JS, Varma A, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland JM, Mehta P, Benatar M, Heatwole C. Zizzi C, et al. Among authors: seabury j. EClinicalMedicine. 2022 Dec 13;55:101768. doi: 10.1016/j.eclinm.2022.101768. eCollection 2023 Jan. EClinicalMedicine. 2022. PMID: 36531982 Free PMC article.
The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure.
Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Alexandrou D, Wagner E, Dilek N, Heatwole J, Wuu J, Caress J, Bedlack R, Granit V, Statland J, Mehta P, Benatar M, Kaat A, Heatwole C. Varma A, et al. Among authors: seabury j. Amyotroph Lateral Scler Frontotemporal Degener. 2023 Aug;24(5-6):514-522. doi: 10.1080/21678421.2023.2204871. Epub 2023 May 15. Amyotroph Lateral Scler Frontotemporal Degener. 2023. PMID: 37190795
Patient-reported impact of symptoms in lung cancer (PRISM-LC).
Varma A, Weinstein J, Seabury J, Rosero S, Zizzi C, Dilek N, Heatwole J, Baumgart M, Mulford D, Maggiore R, Conrow L, King JC, Wiens J, Heatwole C. Varma A, et al. Among authors: seabury j. Transl Lung Cancer Res. 2023 Jul 31;12(7):1391-1413. doi: 10.21037/tlcr-22-831. Epub 2023 Jul 11. Transl Lung Cancer Res. 2023. PMID: 37577309 Free PMC article.
Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure.
Seabury J, Rosero S, Varma A, Weinstein J, Engebrecht C, Dilek N, Heatwole J, Alexandrou D, Cohen B, Larkindale J, Lynch DR, Park C, Subramony SH, Wagner E, Walther S, Wells M, Zizzi C, Heatwole C. Seabury J, et al. Neurol Clin Pract. 2023 Oct;13(5):e200180. doi: 10.1212/CPJ.0000000000200180. Epub 2023 Aug 28. Neurol Clin Pract. 2023. PMID: 37646046 Free PMC article.
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