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Page 1
IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey.
de Beijer IAE, van den Oever SR, Charalambous E, Cangioli G, Balaguer J, Bardi E, Alfes M, Cañete Nieto A, Correcher M, Pinto da Costa T, Degelsegger-Márquez A, Düster V, Filbert AL, Grabow D, Gredinger G, Gsell H, Haupt R, van Helvoirt M, Ladenstein R, Langer T, Laschkolnig A, Muraca M, Pluijm SMF, Rascon J, Schreier G, Tomášikova Z, Trauner F, Trinkūnas J, Trunner K, Uyttebroeck A, Kremer LCM, van der Pal HJH, Chronaki C; PanCareSurPass Consortium. de Beijer IAE, et al. Among authors: haupt r. J Med Internet Res. 2024 May 2;26:e49910. doi: 10.2196/49910. J Med Internet Res. 2024. PMID: 38696248 Free PMC article.
Risk of subsequent gliomas and meningiomas among 69,460 5-year survivors of childhood and adolescent cancer in Europe: the PanCareSurFup study.
Heymer EJ, Hawkins MM, Winter DL, Teepen JC, Sunguc C, Ronckers CM, Allodji RS, Alessi D, Sugden E, Belle FN, Bagnasco F, Byrne J, Bárdi E, Garwicz S, Grabow D, Jankovic M, Kaatsch P, Kaiser M, Michel G, Schindera C, Haddy N, Journy N, Česen Mazić M, Skinner R, Kok JL, Gunnes MW, Wiebe T, Sacerdote C, Maule MM, Terenziani M, Jakab Z, Winther JF, Lähteenmäki PM, Zadravec Zaletel L, Haupt R, Kuehni CE, Kremer LC, de Vathaire F, Hjorth L, Reulen RC. Heymer EJ, et al. Among authors: haupt r. Br J Cancer. 2024 Apr;130(6):976-986. doi: 10.1038/s41416-024-02577-y. Epub 2024 Jan 19. Br J Cancer. 2024. PMID: 38243010 Free PMC article.
Correction: Barriers and facilitators to the implementation of a new European eHealth solution (SurPass v2.0): the PanCareSurPass Open Space study.
de Beijer IAE, Hardijzer EC, Haupt R, Grabow D, Balaguer J, Bardi E, Nieto AC, Ciesiūniene A, Düster V, Filbert AL, Gsell H, Kapitančukė M, Ladenstein R, Langer T, Muraca M, van den Oever SR, Prikken S, Rascon J, Tormo MT, Uyttebroeck A, Vercruysse G, van der Pal HJH, Kremer LCM, Pluijm SMF; PanCareSurPass consortium. de Beijer IAE, et al. Among authors: haupt r. J Cancer Surviv. 2024 Mar 11. doi: 10.1007/s11764-024-01547-w. Online ahead of print. J Cancer Surviv. 2024. PMID: 38466480 No abstract available.
Scaling up and implementing the digital Survivorship Passport tool in routine clinical care - The European multidisciplinary PanCareSurPass project.
Filbert AL, Kremer L, Ladenstein R, Chronaki C, Degelsegger-Márquez A, van der Pal H, Bardi E, Uyttebroeck A, Langer T, Muraca M, Nieto AC, Rascon J, Bagnasco F, Beyer S, Te Dorsthorst J, Essiaf S, Galan AO, Kienesberger A, O'Brien K, Palau MC, Pluijm SMF, di Profio S, Saraceno D, Schneider C, Schreier G, Trinkūnas J, Zamberlan I, Grabow D, Haupt R; PanCareSurPass consortium. Filbert AL, et al. Among authors: haupt r. Eur J Cancer. 2024 May;202:114029. doi: 10.1016/j.ejca.2024.114029. Epub 2024 Mar 19. Eur J Cancer. 2024. PMID: 38513384 Free article.
Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results.
Saraceno D, Chronaki C, Cangioli G, Filbert AL, Muraca M, Berti A, Rielli R, Thomopulos N, Knoerr L, Walz D, Neumann A, Beccaria A, Aulicino A, Nicolas B, Cavalca G, Uyttebroeck A, van Helvoirt M, Brié T, Vanden Meersch E, Ladenstein R, Bardi E, Schreier G, Beyer S, Müllner-Rieder M, Tormo Alcañiz MT, Cervero Beltran L, Rascon J, Kapitančukė M, Trinkūnas J, Stukaitė-Ruibienė E, Ragauskas P, Ciesiūnienė A, Haupt R, Grabow D. Saraceno D, et al. Among authors: haupt r. Stud Health Technol Inform. 2024 Aug 22;316:1280-1284. doi: 10.3233/SHTI240646. Stud Health Technol Inform. 2024. PMID: 39176615
Childhood Cancer Survivorship Passport Challenges in the European Health Data Space.
Gazzarata R, Strübin M, Chronaki C, Cangioli G, Saraceno D, Schreier G, Beyer S, Trauner F, Gredinger G, Ladenstein R, Ae de Beijer I, Cavalca G, Trinkunas J, Cervero Beltran L, Vanautgaerden M, Kock-Schoppenhauer AK, Neumann A, Muraca M, Filbert AL, Haupt R, Grabow D; PanCareSurPass Consortium. Gazzarata R, et al. Among authors: haupt r. Stud Health Technol Inform. 2024 Aug 22;316:1302-1306. doi: 10.3233/SHTI240651. Stud Health Technol Inform. 2024. PMID: 39176620
Barriers, facilitators, and other factors associated with health behaviors in childhood, adolescent, and young adult cancer survivors: A systematic review.
de Beijer IAE, Bouwman E, Mulder RL, Steensma P, Brown MC, Araújo-Soares V, Balcerek M, Bardi E, Falck Winther J, Frederiksen LE, van Gorp M, Oberti S, van Kalsbeek RJ, Kepak T, Kepakova K, Gsell H, Kienesberger A, van Litsenburg R, Mader L, Michel G, Muraca M, van den Oever SR, van der Pal HJH, Roser K, Skinner R, Stolman I, Uyttebroeck A, Kremer LCM, Loonen J, van Dalen EC, Pluijm SMF; PanCareFollowUp Consortium. de Beijer IAE, et al. Cancer Med. 2024 Jun;13(12):e7361. doi: 10.1002/cam4.7361. Cancer Med. 2024. PMID: 39291862 Free PMC article.
Healthcare providers' expected barriers and facilitators to the implementation of person-centered long-term follow-up care for childhood cancer survivors: A PanCareFollowUp study.
Breij D, Hjorth L, Bouwman E, Walraven I, Kepak T, Kepakova K, Haupt R, Muraca M, Göttgens I, Stollman I, Winther JF, Kienesberger A, Gsell H, Michel G, Blijlevens N, Pluijm SMF, Roser K, Skinner R, Renard M, Uyttebroeck A, Follin C, van der Pal HJH, Kremer LCM, Loonen J, Hermens R; PanCareFollowUp Consortium. Breij D, et al. Among authors: haupt r. Cancer Med. 2024 Oct;13(20):e70225. doi: 10.1002/cam4.70225. Cancer Med. 2024. PMID: 39440690 Free PMC article.
Radiation Doses Received by Major Organs at Risk in Children and Young Adolescents Treated for Cancer with External Beam Radiation Therapy: A Large-scale Study from 12 European Countries.
Diallo I, Allodji RS, Veres C, Bolle S, Llanas D, Ezzouhri S, Zrafi W, Debiche G, Souchard V, Fauchery R, Haddy N, Journy N, Demoor-Goldschmidt C, Winter DL, Hjorth L, Wiebe T, Haupt R, Robert C, Kremer L, Bardi E, Sacerdote C, Terenziani M, Kuehni CE, Schindera C, Skinner R, Winther JF, Lähteenmäki P, Byrn J, Jakab Z, Cardis E, Pasqual E, Tapio S, Baatout S, Atkinson M, Benotmane MA, Sugden E, Zaletel LZ, Ronckers C, Reulen RC, Hawkins MM, de Vathaire F. Diallo I, et al. Among authors: haupt r. Int J Radiat Oncol Biol Phys. 2024 Oct 1;120(2):439-453. doi: 10.1016/j.ijrobp.2024.03.032. Epub 2024 Apr 4. Int J Radiat Oncol Biol Phys. 2024. PMID: 38582233
Author Correction: A joint international consensus statement for measuring quality of survival for patients with childhood cancer.
van Kalsbeek RJ, Hudson MM, Mulder RL, Ehrhardt M, Green DM, Mulrooney DA, Hakkert J, den Hartogh J, Nijenhuis A, van Santen HM, Schouten-van Meeteren AYN, van Tinteren H, Verbruggen LC, Conklin HM, Jacola LM, Webster RT, Partanen M, Kollen WJW, Grootenhuis MA, Pieters R, Kremer LCM; International Childhood Cancer Outcome Project participants. van Kalsbeek RJ, et al. Nat Med. 2024 Jul;30(7):2091. doi: 10.1038/s41591-024-03065-9. Nat Med. 2024. PMID: 38778213 No abstract available.
429 results