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Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study.
Nassar EL, Virgili-Gervais G, Carrier ME, Kwakkenbos L, Henry RS, Hu S, Provencher S, Golberg M, Bartlett SJ, Mouthon L, Patten SB, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team, on behalf of the SPIN Investigators. Nassar EL, et al. Among authors: hu s. Lancet Rheumatol. 2024 Oct;6(10):e660-e663. doi: 10.1016/S2665-9913(24)00166-8. Epub 2024 Jun 26. Lancet Rheumatol. 2024. PMID: 38944052 No abstract available.
Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6: A Scleroderma Patient-Centered Intervention Network (SPIN) Study.
S Rapoport C, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Mouthon L, Roesch SC, Thombs BD, Malcarne VL; SPIN COVID-19 Patient Advisory Team; SPIN Investigators. S Rapoport C, et al. Arthritis Care Res (Hoboken). 2023 Oct;75(10):2158-2165. doi: 10.1002/acr.25115. Epub 2023 Apr 26. Arthritis Care Res (Hoboken). 2023. PMID: 36938696
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study.
Xu M, Harel D, Carrier ME, Kwakkenbos L, Bartlett SJ, Gottesman K, Guillot G, Hummers L, Malcarne VL, Richard M, Thombs BD; SPIN Investigators. Xu M, et al. Arthritis Care Res (Hoboken). 2023 Jul 24. doi: 10.1002/acr.25199. Online ahead of print. Arthritis Care Res (Hoboken). 2023. PMID: 37489073
Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study.
Wojeck RK, Knisely MR, Bailey DE, Somers TJ, Kwakkenbos L, Carrier ME, Nielson WR, Bartlett SJ, Malcarne VL, Hudson M, Levis B, Benedetti A, Mouthon L, Thombs BD, Silva SG; SPIN Investigators. Wojeck RK, et al. EClinicalMedicine. 2023 Jul 20;62:102104. doi: 10.1016/j.eclinm.2023.102104. eCollection 2023 Aug. EClinicalMedicine. 2023. PMID: 37533421 Free PMC article.
Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study.
Rapoport CS, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Levis B, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Richard M, Worron-Sauvé M, Benedetti A, Roesch SC, Thombs BD, Malcarne VL; SPIN COVID-19 Patient Advisory Team; SPIN Investigators. Rapoport CS, et al. Int J Behav Med. 2024 Jun;31(3):352-362. doi: 10.1007/s12529-023-10248-0. Epub 2024 Jan 18. Int J Behav Med. 2024. PMID: 38238585
Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study.
Dal Santo T, Rice D, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne V, Mayes M, Mouthon L, Richard M, Sauve M, Wojeck R, Geoffroy MC, Benedetti A, Thombs B; SPIN investigators. Dal Santo T, et al. RMD Open. 2024 Feb 29;10(1):e003876. doi: 10.1136/rmdopen-2023-003876. RMD Open. 2024. PMID: 38428973 Free PMC article.
Factors associated with physical function among people with systemic sclerosis: a SPIN cohort cross-sectional study.
Dal Santo T, Rice DB, Carrier ME, Virgili-Gervais G, Levis B, Kwakkenbos L, Golberg M, Bartlett SJ, Gietzen A, Gottesman K, Guillot G, Hudson M, Hummers LK, Malcarne VL, Mayes MD, Mouthon L, Richard M, Sauvé M, Wojeck RK, Geoffroy MC, Benedetti A, Thombs BD; SPIN Investigators. Dal Santo T, et al. Rheumatology (Oxford). 2024 Oct 1;63(10):2660-2669. doi: 10.1093/rheumatology/keae162. Rheumatology (Oxford). 2024. PMID: 38471107
Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.
Dal Santo T, Golberg M, Nassar EL, Carrier ME, Hu S, Kwakkenbos L, Bartlett SJ, Fox RS, Lee YC, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network Pain Patient Advisory Team. Dal Santo T, et al. Among authors: hu s. BMC Rheumatol. 2024 Jun 21;8(1):28. doi: 10.1186/s41927-024-00398-3. BMC Rheumatol. 2024. PMID: 38907303 Free PMC article.
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