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Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study.
Nassar EL, Virgili-Gervais G, Carrier ME, Kwakkenbos L, Henry RS, Hu S, Provencher S, Golberg M, Bartlett SJ, Mouthon L, Patten SB, Varga J, Benedetti A, Thombs BD; Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team, on behalf of the SPIN Investigators. Nassar EL, et al. Lancet Rheumatol. 2024 Oct;6(10):e660-e663. doi: 10.1016/S2665-9913(24)00166-8. Epub 2024 Jun 26. Lancet Rheumatol. 2024. PMID: 38944052 No abstract available.
Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial.
Kwakkenbos L, Carrier ME, Welling J, Levis B, Levis AW, Sauve M, Turner KA, Tao L, Aguila K, Carboni-Jiménez A, Cañedo-Ayala M, Harb S, van den Ende C, Hudson M, van Breda W, Nguyen C, Boutron I, Rannou F, Thombs BD, Mouthon L; SPIN Investigators. Kwakkenbos L, et al. Trials. 2022 Dec 12;23(1):994. doi: 10.1186/s13063-022-06923-4. Trials. 2022. PMID: 36510233 Free PMC article. Clinical Trial.
Evaluation of Measurement Properties and Differential Item Functioning in the English and French Versions of the University of California, Los Angeles, Loneliness Scale-6: A Scleroderma Patient-Centered Intervention Network (SPIN) Study.
S Rapoport C, Choi AK, Kwakkenbos L, Carrier ME, Henry RS, Mouthon L, Roesch SC, Thombs BD, Malcarne VL; SPIN COVID-19 Patient Advisory Team; SPIN Investigators. S Rapoport C, et al. Arthritis Care Res (Hoboken). 2023 Oct;75(10):2158-2165. doi: 10.1002/acr.25115. Epub 2023 Apr 26. Arthritis Care Res (Hoboken). 2023. PMID: 36938696
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study.
Henry RS, Kwakkenbos L, Carrier ME, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN COVID-19 Patient Advisory Team for the SPIN Investigators. Henry RS, et al. Clin Exp Rheumatol. 2023 Aug;41(8):1639-1643. doi: 10.55563/clinexprheumatol/cca0xv. Epub 2023 Apr 19. Clin Exp Rheumatol. 2023. PMID: 37083160 Free article.
Validity, Reliability, and Differential Item Functioning of English and French Versions of the 10-Item Connor-Davidson Resilience Scale in Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Neyer MA, Henry RS, Carrier ME, Kwakkenbos L, Wojeck RK, Gietzen A, Gottesman K, Guillot G, Lawrie-Jones A, Mayes MD, Mouthon L, Nielson WR, Richard M, Worron-Sauvé M, Harel D, Malcarne VL, Bartlett SJ, Thombs BD; SPIN Investigators. Neyer MA, et al. Arthritis Care Res (Hoboken). 2023 Nov;75(11):2369-2378. doi: 10.1002/acr.25139. Epub 2023 Jun 7. Arthritis Care Res (Hoboken). 2023. PMID: 37128826
Differential Item Functioning on the Cochin Hand Function Scale Among People With Systemic Sclerosis by Language, Sex, and Disease Subtype: A Scleroderma Patient-Centered Intervention Network (SPIN) Cohort Study.
Xu M, Harel D, Carrier ME, Kwakkenbos L, Bartlett SJ, Gottesman K, Guillot G, Hummers L, Malcarne VL, Richard M, Thombs BD; SPIN Investigators. Xu M, et al. Arthritis Care Res (Hoboken). 2023 Jul 24. doi: 10.1002/acr.25199. Online ahead of print. Arthritis Care Res (Hoboken). 2023. PMID: 37489073
25 results