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The IMPACT Survey: the humanistic impact of osteogenesis imperfecta in adults.
BMC Public Health. 2024 Nov 28;24(1):3318. doi: 10.1186/s12889-024-20555-0.
BMC Public Health. 2024.
PMID: 39609757
Free PMC article.
The IMPACT Survey: the economic impact of osteogenesis imperfecta in adults.
Hart T, Westerheim I, van Welzenis T, Semler O, Raggio C, Rauch F, Dadzie R, Prince S, Wekre LL.
Hart T, et al. Among authors: van welzenis t.
Orphanet J Rare Dis. 2024 Jun 3;19(1):222. doi: 10.1186/s13023-024-03218-6.
Orphanet J Rare Dis. 2024.
PMID: 38831282
Free PMC article.
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The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.
Westerheim I, Hart T, van Welzenis T, Wekre LL, Semler O, Raggio C, Bober MB, Rapoport M, Prince S, Rauch F.
Westerheim I, et al. Among authors: van welzenis t.
Orphanet J Rare Dis. 2024 Mar 21;19(1):128. doi: 10.1186/s13023-024-03126-9.
Orphanet J Rare Dis. 2024.
PMID: 38515144
Free PMC article.
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The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review.
Rapoport M, Bober MB, Raggio C, Wekre LL, Rauch F, Westerheim I, Hart T, van Welzenis T, Mistry A, Clancy J, Booth L, Prince S, Semler O.
Rapoport M, et al. Among authors: van welzenis t.
Orphanet J Rare Dis. 2023 Feb 22;18(1):34. doi: 10.1186/s13023-023-02627-3.
Orphanet J Rare Dis. 2023.
PMID: 36814274
Free PMC article.
Review.
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