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Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study.
Goh AM, Chiu E, Yastrubetskaya O, Erwin C, Williams JK, Juhl AR, Paulsen JS; I-Respond-Hd Investigators Of The Huntington Study Group. Goh AM, et al. Genet Test Mol Biomarkers. 2013 Feb;17(2):115-21. doi: 10.1089/gtmb.2012.0288. Epub 2013 Jan 4. Genet Test Mol Biomarkers. 2013. PMID: 23289616 Free PMC article.
In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study.
Williams JK, Erwin C, Juhl AR, Mengeling M, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group. Williams JK, et al. Am J Med Genet B Neuropsychiatr Genet. 2010 Sep;153B(6):1150-9. doi: 10.1002/ajmg.b.31080. Am J Med Genet B Neuropsychiatr Genet. 2010. PMID: 20468062 Free PMC article.
Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.
Erwin C, Williams JK, Juhl AR, Mengeling M, Mills JA, Bombard Y, Hayden MR, Quaid K, Shoulson I, Taylor S, Paulsen JS; I-RESPOND-HD Investigators of the Huntington Study Group. Erwin C, et al. Am J Med Genet B Neuropsychiatr Genet. 2010 Jul;153B(5):1081-93. doi: 10.1002/ajmg.b.31079. Am J Med Genet B Neuropsychiatr Genet. 2010. PMID: 20468061 Free PMC article.